In spite of all the established progress of modern medicine, certain people are attracted to alternative or “natural” remedies and practices. A number of these are not dangerous. As one cancer specialist noted in the past year, people undergoing cancer treatment will often try meditation or vitamins as well. When such a change is in addition to, and not instead of, evidence-based treatment, this is usually not a concern. If it reduces distress, it can be beneficial.
But the proliferation of online health influencers poses challenges that authorities and oversight bodies in many countries have yet to grasp. An investigation into a particular organization providing membership and advice to expectant mothers has exposed dozens cases of third-trimester fetal deaths or other serious harm connected to mothers or birth attendants associated with it. While the entity is headquartered in North Carolina, its influence is global.
“For whole populations, going through labour and birth without skilled support is associated with higher levels of risk for mother and baby,” according to a professor of midwifery.
Childbirth without medical assistance, sometimes called free birth, is permitted in nations including the UK and US. The potential dangers are poorly documented due to a lack of reliable information. Childbirth can be a frightening experience, and high-quality care is far from guaranteed. In England, a alarming recent report found a large majority of maternity units to be unsafe or in need of improvement.
Criticisms of medical systems and particular, longstanding issues with maternity care are in many cases valid. Many of the women interviewed for the inquiry had in the past experienced distressing births.
But while distrust of institutions may be based on experience, it has also become a breeding ground for other influencers seeking converts to their unorthodox methods and DIY ethos. During the pandemic, a “wellness” industry ostensibly focused on healthy living was implicated in disseminating falsehoods about vaccines and fuelling suspicion about official advice.
Worry is rising that such beliefs are acquiring more general purchase. One paper given at a cancer conference focused on misinformation, which it said had “acutely worsened in the past decade”. This investigation shows that behind the facade of an anti-establishment sisterhood lies an enterprise that trains women as social media influencers as in addition to birth attendants. The group does not present itself to be a certified medical provider.
There is no turning the clock back to a time when doctors were presumed to know best. Vast quantities of scientific research are published online and many people use these to positive effect. But there is also a need for safeguards from dangerous advice. It is widely understood that the automated systems used by tech companies reward increasingly sensational content.
In the UK, improvements to childbirth care are urgently needed. They should include the option of home birth and the provision of data to support women in choosing their care. Policymakers and organizations such as the World Health Organization should also develop strategies for the online information landscape so that evidence-based healthcare is not compromised.
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